Mary Louise will be scheduled for surgery on Thursday. She is stage 3 in both eyes with borderline plus disease. I'm not sure what time the surgery will be but will be sure to let everyone know as soon as we find out. She is doing well otherwise and he rash, blisters and cut on her cheek from the Tegaderm is finally healed - only a shadow of red left now in the worst areas.
The nurses have warmed up to us and all come to check on our little ones frequently. We seem to have finally found our niche with them. This is definitely a different system they have here - we have very little access to the actual doctors here - a HUGE change for us. But, we are making do and as I've said before, the physical therapist here is fabulous with both of our little ones. David is already moving differently and is having fewer fits and temper tantrums as well.
The occupational therapist here is also wonderful. She has been working with David's swallowing and this morning, he successfully nippled his entire 18 ml feeding!! We are so so proud! He is only nippling once a day now and still needs a bit of practice but we all know how determined our little man is and know that he will quickly master his newest task.
David had his first follow-up eye exam today. So far, so good with him. He does not need any touch ups and will be checked again in one week. (YAY - you may all do happy dances now!)
Worried about Mary Louise's pending surgery...so so proud of David's wonderful progress! and of course, thankful for every moment we have together!