So Mary Louise is still on the ventilator and David is still having blood in his stool (despite his very short hiatus last night).
Mary Louise can hold my finger when I press her little palm and cries a bit every once in awhile so she appears to be trying to wake up but she is definitely having lots of trouble maintaining breathing during sleep. About every 2 hours someone walks by and looks at us and says,"she just needs a little longer and we'll pull that tube." Ha - we've been hearing that since 9pm last night - I must say that my patience is wearing very thin and as much as I'm trying to suppress my crazy nurse mom side, it's beginning to shine through once more. As if we needed confirmation that she'd been over dosed with anesthetic, the resident for the night shift came by, said the typical,"we aim to extubate her shortly," and then said, "wait, she had this surgery yesterday. Has she not woken up at all yet?" He checked the chart, noticed that she apparently extubated herself during the surgery, they re-intubated her and apparently dosed her quite nicely with sedatives. His exact words were,"oh, she got snowed." Thanks schmuck. Needless to say, I definitely drilled the anethesiologists yesterday on the oddities of our children - and their trouble with anesthesia. Their response? "She's 4 pounds! We've treated 800 gram babies before. She'll be fine - she's huge." I would like to find them and possibly their vehicles and slash their tires (would that be inappropriate - over the top perhaps? hmm - I think not).
David has continued with his intestinal issues. The blood in his stool increased this morning and in questioning why, I found out that he had had a very special time with the doctor during rounds. He got his very own rectal exam. Those morons thought that the thing to do to a 3 pounds baby with blood in his stool was a RECTAL EXAM?! REALLY?! Ok, I must ask, first of all, how much can you feel with a GIANT pinky finger in a 3 pound baby's rear? Second, as if it didn't occur to them that doing such an invasive exam would do absolutely nothing treatment wise and only worsen the symptoms he was having. Are you kidding me?! Also, I asked that they not give him any more reglan - which they for some ridiculous reason started 3 days ago. Side effects include depression and increased GI motility (uhem - diarhea) So I gently suggested that they not give it for at least a day to see if his symptoms would subside. It was then that I found out that he has a rectal fissure (another apparently "common" issue with preemies). There is so much wrong with the communication ladder in this place that it's hard to know where to begin. But I'm really getting annoyed with learning things on the fly. So I asked to speak with the resident in charge of his care (if you're wondering, the cheif neo was not there). The resident (complete with a way too cocky and over-confident attitude) agreed to stop the reglan then told me that he was fussy because "he just needs a little TLC". Again, REALLY? you're going to suggest a little snuggle time for a baby whose parents are holding him approximately 8 to 12 hours A DAY? I suggested that she stop worrying about the chart so much and actually look at her patient more than once a day. Then said, "it may not mean anything to you, but I must tell you that there is something wrong - he is not the same baby as he was 3 days ago. This is just not my son."
Frustrated and scared but keeping it together. Will update if things change.