What a fantastic job Brent has been doing with all the blogging and keeping everyone up to date - including me as I've been out of sorts to say the least during the last week. I'll have to write about that experience later though...
Baby update: Kuylen - such a tough little jelly bean - has hung on yet another night. He is pretty much maxed out on all of his life saving drugs and we definitely treasure each tiny moment we have with him right now. I can't explain how proud I am of him, all of his effort - and I absolutely stand by him 100% - he is making his own decisions. He has taught me so much in such a short period of time. Such a miracle and gift - every moment.
Mary Louise - so sassy. She does not like to be moved about and messed with much and has taken to blowing lots of bubbles with her tiny mouth - she's got quite the sense of humor it seems. She is stable for now - producing lots of exciting urine and the doctors are hoping she continues to do so as the medication needed to fix her heart puts pressure on kidneys - David is actually in the same boat there.
David is also remaining stable. We got a moment as proud parents as he found his thumb this morning while on his front. They have also been able to reduce the amount of oxygen in use and ventilator settings - both good signs. We saw his back for the first time - I know it sounds small - but it was exciting. He's sucking away on his little tiny fist and thumb - absolutely mesmerizing to watch.
I hope this good news lasts for us for a little while at least. But if not, we are thoroughly enjoying the time now. Love to all. Heather
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Sounds like good news for now! You sure have 3 strong willed little ones. I will continue to pray for their strength and determination. Sending love always! - The Lorenzo's
ReplyDeleteYay Babies!!!! Such great news - hang in there, Kuylen! Again, everyone at Moss is rooting for all of you! So good to hear from you, Heather. Everyone keeps asking about how you are doing, and I tell them how wonderful you looked the other day... Stay strong and know we are all thinking of you...
ReplyDeleteLove you!
Hannah (and company) :)
What joy! And each tiny milestone may seem like a trivial thing to those that have no idea but don't let that stop you from treasuring them!!!
ReplyDeleteSuch awesome news about all of them and the strides they are making to contiue to grow and fight for their lives! They are making their own decisions and with the help of God and his angels will survive!
To see how much these miracles have touched you and Brent is amazing. You guys are GREAT parents and have shown that to the world with all that you are doing for your babies! Keep being strong and know that you are all loved and supported even if it is just in prayer! I so wish I could be there to offer you guys hugs and moral support! But know that I am sending my love and the love of my family to you guys each and every day!
MUAH~~~Heather
The thumb sucking is adorable!
ReplyDeleteThe McElroy's are keeping all of the LeBlanc's in our prayers!
ReplyDeletefunny how excing pee can be!
ReplyDeleteglad that you are literally seeing a new side of your little boy! how wonderful that david is able to come down on his vent settings today.
hope you get to spend lots of time with your angels today!!
heather harper
yay for reduced vent settings and pee!!! Those are two good signs!
ReplyDeleteThe babies hearts... do they have PDAs?
Continued prayers for all.
Hehy guys keep up the strength i know its not easy, but it will be worth it those babies will love u forever...im prayin everyday for u guys,
ReplyDeleteMuch love,
Jana