A Little Sigh of Relief

Week 2 is here, and for Heather and I's sanity we needed some positive news. Today was a big day for the Mary Louise and David. Everything started around 7:45 am with their head scans to check for brain bleeds and a heart echo at 8:30 am. Brain bleeds can cause slow development, mental disabilities, and cerebral palsy. The heart echo was to see if the PDA (an in utero bypass for blood around the lungs) has begun to close to help make the lungs function properly. Well the head scans came back negative, so our precise babies are good to this point, and another head scan will be performed in two weeks. The heart echo results show a slight reduction in Mary Louise's PDA, but it is still significantly open. For now the Doctors are just going to allow her PDA to close on its own. David's PDA has not shown any closure. He needs to be weened of his blood pressure medication in order to give him the medication to close the PDA.
Enough of the science stuff. Our babies are doing okay. they have a long way to go, but show some progress each day. we expect to occasionally have some set backs, and maybe a step or two back, but all in all things are okay. Heather and I are doing okay, but we really miss our Jelly Bean, Kuylen. We try to stay positive for each other and for Mary and David who are fighting to survive also. Aug 5th was their official due date, and they expect them to stay in the NICU close to that date. Heather is "hoteling" at the hospital so she can keep a motherly eye on her babies. Since she can not drive our really lift and do much this is the best place for her. She isn't tempted to do laundry, cleaning or furniture arranging here.
I know many are wondering if we are going to have any services for Kuylen. The answer is not at this time. We want to wait until everything has settled down and Mary and David are more stable, before we think about services for Kuylen.
Now onto Medicaid. What a F$#^*#*^ joke this is. I have been told by a number of people that since Heather had to quit work, was pregnant with multiples, the babies would be premature and required a lengthy stay in the NICU, that we would be eligible for some Medicaid benefits to assist with what my group insurance does not pick up. Well I make to much money, and was rejected on within 5 hours of putting my application in. Heather called about WICK and she was shot down on that assistance program also. Medicaid did tell me that they would pass my application on to another program that may help, but I make too much money. That's pretty damn funny. I even told them that my babies would be in the NICU until August, but that went in one ear and out the other. Lets hope that my group policy comes through. Heather was told that she would be eligible for a free breast pump, but we can't seem to track that down at this point. Seems Medicaid doesn't know anything about it, and Wick shot her down. We have a call into the Lactation consultant to see what the next step is to get our free breast pump. On that note, Heather is producing mega milk for the babies, so when they begin feeding Mary and David breast milk, they will have plenty in storage.
Please keep up the prayers, we have a long way to go!

Thanks,
Brent